Sunday, July 29, 2012

Moving to Florida


Moving to Florida

I continued to purge the closets in an effort to decide what to take. I checked the property listings sent to me daily from the agent in Orlando. I had already been pre-approved by my lender. Then one day, I found one. I found a house in Casselberry, Florida. It met all my criteria. I called the agent and said let’s do it. I knew I had to be decisive and offer quickly, or it would be gone. I made an offer on a house, sight unseen. Two weeks later, it was the offer was accepted. I would arrive in town on July 2, just in time for the inspection.

In addition to packing, putting all my furniture in storage, and selling my old car, I also knew I had appointments I needed to make before my departure. I got my eye exam and my new glasses, got that crown I needed on my tooth, got my hair cut, and oh, yeah, my annual visit to the gynecologist. These are all very boring, mundane things that most women put off until they are leaving the area for good; I was that statistical, typical woman.

Dr. Te sent me for my screening mammogram, like so many times before. It had been over two years and I knew it was overdue, but so what? They always come back negative, so routine, a mere formality. How boring!

That is how it started, my entry into to “the system.” The system is like a meat processing plant, an assembly line of breasts. It always follow the same pattern, but sometimes with different outcomes. All women are treated the same, especially women of a certain age, like sheep, because we are so common. No one is unique.

The call comes, “You have to come back for a re-screening. They want to do a magnified image of your right breast. It’s probably nothing.” I agree. Most of these things turn out to be nothing. Another office, another screening, cold, impersonal, over quickly, slam, bam, thank you, ma’am. The radiologist comes out to speak to me. She does not know me, she is a total stranger. But she has given this speech thousands of times before to thousands of generic middle aged women, like me. “What kind of biopsy would you prefer, the invasive one, where they open you up, or the needle biopsy?” Oh, I would like the needle biopsy, naïve me, thinking that doesn’t sound too difficult or painful. No time off from work. I’m not concerned, most of the time these things turn out to be benign.

On, May 31st, 2012, I report like a good little lamb to be biopsied in two places. The three, faceless, nameless ladies attending me assure me the worst part is the table. I put on a robe and am led to a scary, dark room, with a big machine. I know they are going to numb my breast, so I am not concerned about pain. I am asked to lay face down on a hard, hard table with my breast hanging through a hole. These technicians spend the next twenty minutes yanking on my breast and asking me to adjust my position. Occasionally they ask me my name and age, because they have forgotten who I am and they want everybody to know how old I am. It is extremely uncomfortable and hard on my back. Then the doctor enters the room. She crawls under the table and inserts a tube, not a needle, into an incision she has made in my breast and turns on the big machine. It makes a horrible noise! I have never felt so dehumanized in my life. I was thinking a slim needle, a little poke, draw out some cells, send it to the lab. No! This thing is a drill! No wonder they don’t tell you that! They are drawing out a core sample, like scientists who take core samples of the earth, or core samples of trees. Eventually, it is over. My breast hurts a lot in the two places where they drilled me. My breast will permanently have two indentations and hard lumps where the incisions were. My body aches, especially my back. The ladies ditch me to get dressed, humiliated, hurting, and head out the door, all alone. Dr. Te calls me the next day and tells me, “You’ve got breast cancer.”

How I Got Here


Let’s back up for a second and I’ll tell you how I got here.

For many years, my brother and I have been trying to get our mother to move out of her home of 30 years in Medford, OR to somewhere closer to one of us. Medford is an out of the way place, difficult and expensive for us to go should the need arise. Mom is 89 years, old, slow and frail with no relatives in Medford and only one friend, a neighbor still living there. The neighbor looks in on her from time to time, but Mom has no other support system.

Our best efforts were in vain, though, because of financial constraints and the fact that mom is typical of her generation. She is irascible, cantankerous, ornery, contrary, cagey, sly, suspicious, and fiercely independent. She is also a hoarder.

Then one day, the divine intervened; mom became an heiress. Mom always said Aunt Genny was rich. Well, I guess she was right, because when she died she left mom enough to pay off her debts, move from Medford and live worry free for the rest of her days.

Florida was always the destination for her. She did not want to live with me in Seattle, too cold and rainy (unlike Oregon). Since, my brother already owned a home there; the wheels were put in motion.  There was only one problem, my brother travels a great deal for business and our mother was afraid she would find herself alone there, a legitimate concern.

There was only one solution, I would move to Florida, too. The timing was right, there was no reason not to, and a number of reasons in favor. #1-I do not have a meaningful, fulfilling career holding me in the Northwest. In fact, the job I have would allow me to transfer to Florida with no problem. #2-my children are all grown and gone away. The two older ones live in Europe, and the youngest lives with her father. I rarely ever see her. #3-I sold my townhome and was living in an apartment in Kirkland. Even with my low wages, with the little that I got from the sale, I would be able to afford to buy a house in a depressed real estate market like Florida. I could not afford to live alone in Washington; the cost of living there is so high, I would have to have a roommate. #4-I was trapped in a toxic relationship with my on again/off again partner/roommate. I needed to severe those ties completely and irrevocably. #5-best of all, I would be able to care for my mother in her golden years, in a way only a daughter could. No need to hire a caregiver. I would find it a privilege, a joy and an honor to take on that responsibility. I would care for her with respect and preserve her dignity. I have no grandchildren; none on the horizon. At last, something to give my life purpose!

Everything was falling into place. I went to Oregon in January (2012) to help my mom put things in order. We went to the lawyer, the accountant, the doctor, we got a referral for a real estate agent, made arrangements to sell her “treasures” at a consignment shop and hired a lady to help organize and clean. I flew back to Seattle after 10 days feeling good about what we had accomplished and looking forward to the future. We had a goal, mom’s 90th birthday in September, family reunion in the land of milk and honey, everyone would be there to celebrate in the Promised Land. Next September in Jerusalem!

But it was bittersweet for me. I loved the Northwest. I had lived there for over 20 years. I knew the area well and had many, many dear friends. Sure it rains a lot but that accounts for the natural beauty. I looked out the window as we flew over Mt. Rainer and tears rolled down my cheeks.

I was put in contact with a real estate agent in Florida and he began to email me potential home listings in the area I wanted, with the features I wanted and in my price range. I spoke to my employer and they agreed they had no problem with me moving. I could keep my job. I requested the week of the 4th of July off so I could move and purchased an airline ticket, one way for me and Rufio. I applied for pre-approval for a loan for a mortgage. The clock was ticking.

The days went by, the weeks went by, the months went by. I continued working, cleaning out closets, purging, moving is good for that corresponding with Tim and mom, working out, and working on completing my Competent Communicator goal at Toastmasters. Then mom went to Tim’s in April to look for houses. I definitely want to be in Orlando, the nearest big city to Tim, who lives in Daytona, a sleepy, seedy, weedy little beach town with no opportunities for me. Dear Tim took mom every day, an hour’s drive into Orlando, to look at houses with the real estate agent. She stayed 3 weeks and came back to Medford without a deal and promptly fired the lady we hired to help her. Things came to a crashing halt when she told me my sister was coming for a visit in June.

I called her, broke down in tears, yelling, begging, pleading, crying, “You don’t understand. I have turned my whole life upside down for you. I have given notice at my apartment, told my employer, said good bye to all my friends, bought an airline ticket. I can’t turn back now! And now you are telling me you don’t know when you will be coming to Florida!”

Florida is a state; I had only set foot in twice in my life. I do not know a single soul there, except my brother. I never had any desire to move to Florida. Now imagine me living there, expecting to be with family, but instead all alone, and not knowing anyone, my brother possibly working in New York. I was devastated.

“Oh, don’t do it for me, honey, do it for you.” Of course, I was doing it for her and now she tells me she won’t be there in September, as we planned! She has too much to do before she can show the house to a real estate agent. Maybe she can come for the holidays in December.

Mom is 89 years old. She is frail, slow, and forgetful. She will NEVER be able to get a house ready to show. “Just get on a plane, I begged her.” “We will hire someone to prepare the house for market.” “Oh Amy”, she mockingly laughed at me, “you don’t understand.”

I have come too far at this point to turn back now. I will go ahead and move to get out of a bad relationship and for all the other reasons I mentioned. Maybe if I am physically there, she will be more inclined to come. Maybe…

So, This Is Breast Cancer


For those of you who like to know these things, this is what I have:

Pathology indicates malignant carcinoma in situ (DCIS) at 6 o’clock and DCIS with a 1.3 mm area of invasive ductal carcinoma  (ID) at 6:30. (Funny, I never thought of my breast as a clock, but I do now). Pathology results are concordant with imaging findings.

In my right breast, at 6-6:30, posterior depth, a sterotactic biopsy was performed which found invasive mammary carcinoma with the following features;

1.     ER+  meaning it is receptive to the hormone, estrogen
2.     PR-  which means in is negative to progesterone
3.     HER2 negative which means it is negative to oncogene protein (I think)

Also, in the right breast at 6:00, middle depth, the biopsy performed shows Ductal carcinoma in situ (DCIS) which in also ER+, or positive to the hormone, estrogen.

The invasive carcinoma in my right breast which is at 6-6:30, posterior depth, the tumor size in at least 0.13 cm. It has a Nottingham grade 2 of 3 (tubular score 3 of 3, nuclear score 2of 3 and mitotic count 0). All of which means I am at stage 1 cancer.

At 6:00, middle depth the cancer is ductal carcinoma in situ (DCIS). This is probably the most common form and many women, of a certain age have it. It means the cancer cells are sitting in the milk duct and they have not gone anywhere, yet. The size in at least 0.8 cm and involves 3 of 7 cores. The pattern in solid and cribriform, the nuclear grade is 3 of 3. Necrosis is present and microcalcifications are present.

This is what the pathology reports say. But what does all this mean?

Introduction


There are two reasons for my writing this blog. First, there is no way I could communicate with each and every one of you, as much as I would like. Second, it will answer many questions you have been asking. Initially I  delve a little deeply into detail. This is to bring some readers up to date. Some of you may want to skip this information.  I plan to post more frequently in the days, weeks, and months ahead and will try to stay current.

A warning about some of the content. For those of you who are a squeamish about older women talking about their body image and sexuality, there will be future posts you will want to overlook. But I will give you ample warning that frank, adult content is coming so you can opt out.

Please feel free to write comments. I plan to be very honest with my feelings and emotions. Do not be surprised if it is unpleasant to read, and sometimes even harsh. But know that it is real.